カメ少年、背中の甲羅の切除手術を受ける…コロンビア
2014/07/11
コロンビアの男児ディディエル・モンタルボくんは、みんなから「カメ少年」と呼ばれていました。背中にカメの甲羅のような大きな腫瘍ができていたからです。
甲羅はディディエルくんの体重の20％ほどもある大きなものでした。甲羅が邪魔で、ディディエルくんは、体を動かす楽しみを制限されていました。「カメ少年」と呼ばれるたびに悲しくなり、お母さんに「なんで僕には甲羅があるの？」とたずねたそうです。お母さんには答えるのが非常に難しい質問でした。
2011年、ディディエルくん（当時8歳）は「先天性色素性母斑」という診断を受け、甲羅の切除手術を受けることになりました。英国の形成外科医ニール・ブルストロードさんが、コロンビアの首都ボゴタに出向き、現地の外科医チームと協力して手術を行ないました。甲羅の切除後には、数段階に分けて、複雑な皮膚移植を行なう必要がありました。
ブルストロード医師の話：「ディディエルくんの腫瘍は、これまで私が見た中で最悪のものでした。体の外周の3/4が病気に冒されていました」
参照元 ： アメナマ！
Boy had giant 'turtle shell' mutation removed from his back after UK surgeon flew out to Colombia to treat his rare condition
PUBLISHED: 16:09 GMT, 10 July 2014 | UPDATED: 08:16 GMT, 11 July 2014
Boarding a plane for the first time in his life was a big event for Didier Montalvo.
The eight-year-old travelled from his home town in Colombia to the UK to meet other children struck down by the rare condition he faced.
Didier was labelled 'Turtle boy' after developing a shell-like growth on his back.
But three years ago the youngster underwent a life-changing operation to remove the huge mole, which weight around 20 per cent of his body weight.
Didier looks in wonder after his giant mole is removed from his back (pictured right)
Didier, now eight, appeared on today's This Morning after travelling to the UK to meet other children suffering the same condition he faced
Didier's mother Luz told Phil and Holly: his mother Luz said: 'He felt very bad before the surgery, it impeded him from doing a lot of the activities he enjoyed doing. When he heard people calling him "Turtle boy" he felt very sad and he would ask "Why do I have this?" It was a very difficult question to answer'
Didier was diagnosed with the rare illness Congenital Melanocytic Nevus (CMN) in 2011.
Appearing on ITV's This Morning, his mother Luz said: 'He felt very bad before the surgery, it impeded him from doing a lot of the activities he enjoyed doing.
'When he heard people calling him "Turtle boy" he felt very sad and he would ask "Why do I have this?" It was a very difficult question to answer.
'We always had hope that something would be done.'
But thanks to leading UK plastic surgeon Neil Bulstrode, who operated on him free after hearing of his plight, Didier can now grow up as any other child.
Mr Bulstrode said: 'One of the main focuses for us was to try and get Didier to feel like he could reintegrate with society.
'But also to relieve the huge weight that he had. It was around 20 per cent of his body weight.
't was like us carrying around a sack of potatoes and was hugely impinging on his lifestyle.'
Video provided courtesy of This Morning
Mr Bulstrode removes the growth during surgery in Colombia
Didier and his family was ostracised by their village due to his condition
Smiling again: Didier says he can 'grow up' now his mole has gone
Mr Bulstrode flew to the Colombian capital Bogota to help a team of surgeons remove Didier’s birthmark, which had grown so big that it was feared it could become malignant.
The doctors then had to carry out a complicated series of skin grafts over several stages.
Mr Bulstrode told the Evening Standard: 'Didier’s was the worst case I had ever seen. Effectively three quarters of the circumference of his body was affected.'
During his stay in the UK Didier met fellow CMN sufferer Jodi Whitehouse, who set up a charity called Caring Matter Now to support children in the UK with the condition in 1997.
She told This Morning: 'We support around 400 families in the UK and internationally, and we offer support days, support pack fro parents and for teachers and staff at schools, it's a real network and children are now growing up knowing they are not alone, like Didier thought he was.
'Coming to the UK he has met children for the first time who also have the condition.'
Didier and his mother have been staying with a South American family living in London whose four-year-old son also has the condition.
Jodi said: 'They are like best friends now, playing football together in the garden and having lots of fun. A real friendship and bond has been built.'
参照元 ： Daily Mail
このブログにコメントするにはログインが必要です。
さんログアウト
この記事には許可ユーザしかコメントができません。